Try, Try Again

I don’t want to bore you with each session that had the same outcome, so I’ll sum them up.

I would go through all the neurological tests for my eyes, neck, hands and feet. We would try new program settings on various nodes and I would continue to ramp it up a little at a time every few days from home. When I got to the point of too much pressure in my head, I would turn it down and wait to see if I made progress.

Before leaving the appointment, I would get a round of injections from head to toe. I can’t say enough for Botox. I wouldn’t be as independent without it to this day. I am always exhausted by the time I leave.

I was starting to think Dystonia had gotten the better of me and DBS wasn’t effective for me. Dr Kumar never gave up. He would have regular calls with Dr Ojemann, my neurosurgeon, to brainstorm on my treatment.

I did make some progress but it was inching along. Fast forward about a year and a half before I saw significant changes.