Subtle changes started happening in the beginning of 2022. My right eye started involuntarily closing again. We thought increasing Botox would take care of it, which it did for a while.
My energy was depleted by the end of the week. Sometimes I would need a whole day in bed over the weekend to recharge my energy level.
Then one night laying in bed, the toes on my right foot curled under. My whole foot was cramping and I was unable to straighten them out. I had to get out of bed and physically pry them straight. I thought perhaps this would be a one time thing. Unfortunately, it started happening every few days until it was a nightly occurrence. It’s as if the weight of the blanket triggers them to curl. We started Botox injections for my feet again.
I couldn’t understand why this was happening because I had made such great progress with my feet since my DBS surgery.
Me Myself and My Dystonia 