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My Journey to DBS Surgery

Me Myself and My Dystonia

  • Chapters
    • Chapter 1: The Beginning
      • My Dystonia Story
      • The Beginning
      • My Next Diagnosis
      • My First Misdiagnosis
      • My Second Misdiagnosis
      • My New Neurologist(s)
      • Spasmodic Dysphonia
      • Pain Neurologist
      • Public Perception of Disabilities
      • Hand & Wrist Focal Dystonia
    • Chapter 2: Leading Up to BDS Surgery
      • A Day in My Life…So Far
      • Helpful Hacks
      • Genetic Testing
      • Lower Limb Dystonia
      • Lower Limb Injections
      • Slowing Down
      • Another New Normal
      • Mary
      • Neuropsychological Testing
      • Surgery on the Horizon
      • Final Preparation for Surgery
    • Chapter 3: DBS Surgery and Recovery
      • Surgery #1
      • Recovery from Surgery #1
      • Surgery #2
      • Recovery from Surgery #2
      • Ground Zero
      • Programming FAIL
      • Surgery #3
      • Wigging Out
      • Hair Today, Gone Tomorrow
    • Chapter 4: Programming
      • Off to a Slow Start
      • Try, Try Again
      • March 2021
      • Another Diagnosis
      • New Battery…New System?
      • Abbott System Replacement
    • Chapter 5: Year 2022
      • Things Start Changing
      • Trouble with My Hands
      • Bad Penmanship
    • Chapter 6: 2023
      • Long Term Disability
      • DBS Surgery Again
      • Hair We Go Again
      • Left Side First
      • Right SideNext
      • Final Surgery
  • Contact

Chapter 1: The Beginning

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