Just when I thought things were on autopilot; my doctor told me he had taken a position with Kaiser. Of course, I didn’t have a way to get Kaiser insurance, sad day! I was referred to a neurologist in a sister office of his practice.
My new doctor was nearing retirement. I wish I knew this before I started seeing him or I would have started looking for a different movement neurologist. I’m not sure if his eyes were that bad or if his ‘I don’t give a poop’ had kicked in. He didn’t start the visit with an exam to see how much Botox I still had at the affected area. He would skip this step altogether. Hmmm, big red flag!
Obviously, injections have a level of discomfort but they had never hurt as much as they did with him. The injections on my eyelids near the bridge of my nose always bug me because my eyeball can feel the needle injecting fluid. I think the needles he was using were too big. My eyes were always bruised after I left his office. The injections in my neck would also leaving me hurting and bleeding. He said he was following the injection pattern of my previous neurologist. Yeah, no! I would have to tell him when he missed a location. There’s only so much makeup I could use on my bruises.
I only went to him 3 or 4 times and needed to figure out how to find a movement neurologist. I had decided to tell him this was my last visit and tell him exactly why. It didn’t work out that way because he informed me, he was retiring and it would be my last appointment. What?!? He broke up with me, d’oh!
I went to my family doctor for help in finding a new movement neurologist. She did a fabulous job researching neurologists before submitting a referral for Dr Kumar. I’m surprised he was taking new patients. I had no idea at the time how he would change my life for the better. I am so grateful for him and his staff. I can’t imagine I would be doing as well as I am if I had another doctor.
Me Myself and My Dystonia 