I no longer need injections in my feet or legs, which is big success in my book. I’m still getting injections for my hands, wrist, eyes and neck. At this moment my injections are at peak effect. Ultimately the goal is to have no injections whenever we find the perfect program setting.
In this video you can see my middle finger does not have enough Botox so it sticks up too much. The pain goes up my hand when I try to use it for things like typing. I struggle to hold a pen when I write more than a few words but the good news is that I no longer need a writing aid to hold my pen.
https://mydystonialife.com/wp-content/uploads/2021/03/right-hand-5.mov
In this video you can see that my middle finger got too much Botox causing it to droop. This makes things just as hard as if it didn’t get an injection because it becomes rather useless at certain tasks. My pointer finger has pain from trying to compensate.
https://mydystonialife.com/wp-content/uploads/2021/03/left-hand-2.mov
My eyes are a 10 out of 10, as my daughter would say. My neck is in pretty good shape too. At the end of the video is my neck at a resting state and I’m not making it stay straight. I don’t have much pain at all when using it and call this a success too.
https://mydystonialife.com/wp-content/uploads/2021/03/eyes-1.mov
Me Myself and My Dystonia 