One day lying in bed, one of my toes curled under my foot and I had to physically pull it up. Hmm, that was new. I brought it up at my next doctor appointment and sure enough I now had lower limb dystonia. At first the toe curling was only my left foot. The weight of a blanket is enough to cause my toes to curl. At times when I can’t pry them straight, I use the floor and put weight on them in order to straighten them out. Eventually it made its way to my right foot too.
Then I started having problems walking. At first it was just my right foot pointing out, like Charlie Chaplin except it’s only one foot. I don’t recall how much time went by before my right foot started dragging. I thought it was my ankle or knee causing my foot to be weird. It was actually my hip. Then my gait slowed down.
I was experiencing new symptoms at an alarming rate. Before we could figure out a game plan, a new issue would surface. I was having a hard time processing the fact that I could no longer control my own body. It felt like the dystonia had not only taken over me physically, it was taking away my freedom.
It was time for another come to Jesus moment and learn how to adjust to my new normal. There are millions of people who struggle with hardships greater than mine. I have an amazing family support system!! I was about to learn that I have an extended family at work too…
Me Myself and My Dystonia 