It snuck up on me that I was having more bad days then good. Soon I was so exhausted from the work week that I would spend most of the day in bed on Saturday. It eventually led to spending Saturday and Sunday in bed. Not only was I missing out on family outings, I was missing out on family time.
Everyone at home really picked up the slack but it was a hard thing for me to admit that I had to rely on everyone for help. I felt old beyond my years. I even started to look older when I saw my reflection in the mirror. The ugly truth was, I simply wasn’t the same person I was a few years ago.
I didn’t feel sorry for myself because I had so many wonderful things going for me. There were, and still are, moments when I fuss it out and then I’m good to go. However, I was wondering how long I would be able to function without major changes. Changes did come quickly and then I was wondering how long I would be able to hold on at all.
My right hip started to seize up when I walked more then a hundred feet or if I stood more then a minute. The knee scooter wasn’t cutting it because I didn’t have the strength to push with one leg and the other leg would start hurt. A wheelchair was in order. Oh, except my hands didn’t work well enough to push myself for the entire day.
I was out of ideas on how to get around my physical obstacles. Sad day indeed!
Me Myself and My Dystonia 