Yep that’s right, I’ll be getting my second DBS system. After multiple doctors appointments and input from some of the top movement disorder specialists, they decided the next step will be a DBS system implanted in the STN portion of the brain.
My current system is in the GPI portion of the brain. There isn’t a lot of research with this course of treatment on someone with generalized Dystonia.
Since I already have a system, they can’t do my surgery in the MRI machine. That means I will be awake for this go round. They can only do one side at a time, so it’s not too much on my body.
I have a slew of preop appointments, one of which is a MRI scan. I can only have the scan done in a MRI machine that’s approved for a DBS System.
Fun fact, I can only go for half an hour in the machine then there’s a cool down period of half an hour before they can finish the scans.
Me Myself and My Dystonia 